What is Costello Syndrome
Costello Kids was established by Colin and Catherine Stone in 1995 when they discovered their daughter, Helaina, had been born with Costello Syndrome. Costello Syndrome is a rare syndrome which is characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive and developmental delay, and cancer. An extremely rare and severely life-limiting genetic condition with only around 500 diagnoses worldwide.
A Helpful Hand
We’re a parent to parent support group that provides information and support about Costello Syndrome to parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from our website, (Costello Kids) “don’t stop asking questions!” The answers may surprise you.
Our aim is to gain a better understanding of Costello Syndrome and to identify the best practices in treatment for our children. But most importantly we provide a support network through which families can share their own experiences and support each other through mutual understanding and experiences.
Costello Kids is currently an active campaign on Fundmypage.com. So far they have reached 13% of their overall target will 8 backers. This is an excellent start. We encourage more people to step forward and help to raise funds for research into the disease and improve the standard of living for these children. To support the cause, follow the link. Support Costello Kids.