International Costello Syndrome Support Group

United Kingdom
Costello Syndrome is a rare syndrome which is characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive and developmental delay, and cancer. We’re a parent to parent support group that provides information and support about Costello Syndrome to parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children.

Charity Registration Number:


Charity Address:

90 Parkfield road north, New Moston, Manchester, M40 3RQ